Oops...over a year?!?

I can't believe it's been over a year since I updated the blog.  So much has happened in all that time.  Let's see if I can do a run down.
    November 2011 - Little Man had another scary seizure that may have been a mini stroke.  Another ambulance ride.  Another scare.  In the ER they had a hard time waking him up, but eventually he was able to answer questions so we got to go home.  I'm very happy to say that's been the last seizure he's had.  He's on a couple meds that control them, but whatever.  Let's just keep those seizures away.
   November and December were also full of medical tests and appointments for Little Man mostly that kept us busy.  MRIs, blood work, upper and lower scopes, I can't remember it all.  School was good dealing with all the days missed for appointments.
   Early 2012 gave us the news that Beans passed his first food! He really wanted to try cheese (dairy) but was so afraid he'd fail it that it took days and a lot of convincing for him to even take his first bite.  When he finally was scoped and biopsies were taken, the big news came that he PASSED.  I had perhaps the happiest kid anywhere.  Since then he's added wheat and is currently trialing eggs.  He'll have another scope again soon, I'm guessing November, to see how those eosinophils are doing.
  The first real birthday cake in years was amazing!
  I think this is the first time ever that Little Man's been more complicated than Beans. 

 Last day of school pics for both :)  First is Blade (3rd from the left) and 3 of his friends.  Next is Koty, red-eyed from crying, and his teacher, Griff, who we'll both dearly miss.

  

  We're in the middle of another run of appointments for Little Man.  Pediatrician for what was supposed to be shots, but turned out to be a chest cold with a surprise gift of a new nebulizer for each kid since ours died the night before.  Neurology is doing 6 month follow ups but as long as the seizures stay in line we're just following along there.  The essential tremor is still there, severe as ever but we're not adding an additional medication to treat it right now.  Psychiatry's biggest concern right now is getting him to sleep.  That may sound trivial, but without sleep everything else goes down hill.  Urology is in a few days to follow up on things in that department.  Today was supposed to be an appointment with orthotics but they rescheduled for the 12th.  Little Man definitely needs things changed with his AFOs.  He's able to twist his ankles in his current ones and is having pretty much daily knee and hip pain.  So we'll get that figured out in a couple weeks.  In October both kids see GI and we'll see where we go with their issues from there.

   I can't believe we're just over a month from Little Man's 13th birthday!!!  I think he's going to want a My Little Pony theme, but we'll see.
 
 Thanks for checking in on the kids again.  I will try to get better at updating the blog again.