HUGE Day for Beans!!!!

Beans GI just called.  He has passed almost all foods!  His eosinophilic esophagitis is in remission!  He now has all foods allowed except corn, soy, chicken, fish, watermelon and nuts!!!!  His biopsies came back clean with the exception of showing a little reflux!  The GI was going to put him on Pediasure by tube and mouth, but the second ingredient is corn.  The nutritionist will be calling soon with our new formula options.  Even though he has so many options, and eats so much, the kid can't gain weight without the tube feeds so we'll see what they recommend.  I love being able to feed my son and he loves it even more!

Another Month, Another Scope

Beans was totally not thrilled at the prospect of yet another scope.  At my best count he's had probably somewhere in the neighborhood of 40 scopes in his lifetime. At this point it's not the scope itself he's afraid of, but he's not a big fan of ivs and he's terrified he'll lose another food.  This time went much easier.  For starters he got a pre-op room with a tv and spent his time watching his favorite shows instead of being anxious of what was about to happen.

Then he got changed and was burrito'd in a nice warm blanket.  Always a good thing.  Notice his eyes are still focused on his show.  Lol.

This time his GI decided to use a different kind of anesthesia.  Normally his IV is started in pre-op, he gets emla numbing cream and versed to help take the edge off and help with anxiety and then is given propofol in the scope room for anesthesia.  He's anxious the whole time and wakes really upset.  This time the GI decided to use a different kind of anesthesia.  No IV beforehand, laughing gas then gas anesthesia and the IV was placed after he was asleep.  No anxiety, no pain, and I got to stay until he was completely asleep.

When he started to wake up, and after he was extubated, they called me right back, so he never even knew of a time I wasn't with him.  His heartrate also stayed in the 60's instead of dipping into the low 40's.  He didn't need any oxygen after he woke up like he normally does either.  So soon as he was awake (which came quickly) he got to sip an icee.  He held it down so the IV came right out.  No prolonged monitoring needing.  I think I like this other way of doing scopes just as much as he does.

The initial verdict is that his esophagus and stomach look great.  We have to wait for the biopsies to come back next week for the final report.  Then the GI will call with the next step.

Apparently Beans has a very recognizable name.  Two child life specialists and a few nurses saw his name in the pre-op area and stopped by to say hi.  This was his initial response:

he chilled out each time and would finally say hi and talk to them.

Here's hoping the biopsies come back with 0 eos and we get to start on the next step of his treatment.