Thursday, February 14, 2013

Tracking the Brain

To finally answer the questions "Is K still having seizures?" and "Are the seizures contributing to her other issues (learning, mood regulation, sleep)?" she had a 24 hour continuous EEG last night at CCMC.  She wasn't concerned at first and cooperated perfectly while getting all the electrodes glued to her head.

Robo-K...or Alien K as Beans preferred

 She even did well having a huge rope of wires connected to her head.  When bedtime rolled around, and we realized I forgot her teddy bear, her head was itching, and reality set in that she wasn't sleeping in her own bed she had some tears.  A snuggle session with mom and a rescue stuffed elephant by her nurse calmed her and she fell asleep easily.


She had to stay in bed for the full 24 hours as they have a camera on her to catch any signs of seizures and to correlate what they see on the EEG with what her body shows.  Thank goodness for Child Life - the entertainment, distraction and teaching experts at any good children's hospital.  They brought her art projects to do and, her favorite, a Wii to play.  She was quite happy to stomp on me in several games of tennis. :D

I'm not sure what the test showed - we'll get the results next week - all I know is the computer tracking her brain waves showed tons of 'events' and many times that of 'spikes.'  They had me bring homework for her to do so we can see what happens when she's doing school work.  Again, I don't know the results, but when she dropped her book and most of the times she lost her place when reading (happens super often with her and one of the big reasons her reading is so far behind) the EEG showed a ton of activity.  Does that mean anything?  I don't know, but I'm very interested to get these results.



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