Making Progress

First the greatest news: Beans has grown 2 inches and gained 5 pounds in the last 9 months! WTG little guy! The GI and dietician were thrilled with it and the dietician gave me some information about avoiding heat illness since Beans definitely struggles with that. They increased his feeds from 300 to 330 ccs (10 to 11 oz) 6 times a day to keep up with his growth and activity level. Everyone is thrilled he's playing soccer and loving it! :D

The rest of the appointment could have been titled "to be continued..." As I was suspecting, both kids need to be scoped and Little Man needs an impedance probe. The GI tried to get them in tomorrow, but they're booked solid so we'll have to do a return trip in just under two weeks. Bright and early the 18th Beans will have his endoscopy - hoping for clean results so we get the okay to start a food trial! Immediately following Beans, Little Man will have his scope to check for damage to his esophagus, the status of his stomach wrap and hiatal hernia (repaired when he was 3), check for carbohydrate malabsorption issues, and check for the dreaded eosinophils. The doctor isn't too worried about EE (what Beans has), but we definitely have to check. While he's under for the scope, he'll also have an impedance probe placed down his nose and into his esophagus to check how much he's actually refluxing in a day. He had this test long ago, but he doesn't remember it and I'm sure not mentioning the nose tube thing until right before the procedure or he will freak out.

All of these tests on Little Man will tell us if he needs his stomach surgery repeated and/or if he has an eosinophilic disorder. We'll have to be here for two nights, but will be able to stay outpatient at the Ronald McDonald House.

Having two trips to Orlando so close together is quite a financial strain. If anyone has super fast fundraising ideas I would love to hear them. We don't need to raise too much, but we do need to pay for gas, food, and the fee to stay at RMH. We're trying to get things done as quickly as we can to have the kids as stable as we can for our move.

Just another couple weeks and maybe, hopefully, I can feed Beans again!