Yes, today we added another item to the list of things my little guys deal with. Today Little Man's psychiatrist and developmental ped were able to confirm the diagnosis of seizures. It's long been suspected, and apparently 30% of kids with an autism spectrum disorder will start having them by the time they hit adolescence, so it wasn't a big shock. The good news is his don't seem to be too big right now, the bus incident on Wednesday was his biggest one yet and it was really small considering. It does explain why he's had such a drastic increase in development, decrease in frustrations (slurred speech, clumsiness, etc) and more stability in general since starting Trileptal in April. They upped his dose today to 450 mg twice daily (from 300 mg twice daily) and if things continue going well we're hoping to try getting him off some of his other medications, especially the Abilify.
The current thinking is that his seizures are not the "tv" type seizures, in fact he doesn't shake at all. His seem to be more of a short-circuit in his brain - he either blanks out, passes out or becomes disoriented and aggressive. If we can get his seizures under good control we can start weaning off the other psychiatric meds. How great would that be?
As for Beans, I'm still dealing with the school. This is getting beyond ridiculous. He's already missed seven days of school! I have yet another meeting on Monday at 3:45 and this time a special needs advocate and his CMS nurse (oversees all his specialists and care) will be attending with me. I'm really hoping he can get to school soon, especially since my classes start Monday and as things are now, he's going to get really well acquainted with the hallways outside my classrooms. He's not ready for college lol, he needs to be in third grade with his friends, learning and playing and being a kid.
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